WELCOME

NOTICES

DES FAQS

TIMELINE

HEALTH CARE
GUIDELINES

RESOURCES

Resources & Links

• DES Update
  Center for Disease Control (CDC)
  Phone (toll-free): (888) 232-6789
  ncehinfo@cdc.gov
  http://www.cdc.gov/des/
  
  
• Transplacental Hormonal Registry (Clear Cell Cancer Registry)
  Phone: (773) 702-6671; Fax: (703) 702-0840
  Diane Anderson
  http://obgyn.bsd.uchicago.edu/registry.html

• National Cancer Institute
  Phone: (800) 4-CANCER or (800) 422-6237
  DES: Questions and Answers
  http://www.cancer.gov/cancertopics/factsheet/Risk/DES
  

• DES Action USA
  158 South Stanwood Rd., Columbus, OH 43209
  Phone: (800) 337-9288
  desaction@columbus.rr.com
  http://www.desaction.org/

DES Action Canada: http://www.web.net/~desact/
DES Action UK: http://www.des-action.org.uk/
DES Action Ireland: http://www.desaction.ie/
Reseau DES France: http://www.des-france.org/accueil/default.asp
DES Action Aktiegroep the Netherlands: http://www.descentrum.nl/
DES Action Australia - NSW: http://www.health.nsw.gov.au/des/index.html
DES Action Pennsylvania: http://www.desactionpa.org/

• National Women's Health Network
  514 10th Street NW, Suite 400, Washington, DC 20004
  Phone: (202) 347-1140; Fax: (202) 347-1168
  Clearinghouse: (202) 628-7814
  http://www.womenshealthnetwork.org/
  The National Women's Health Network is an advocacy organization giving women a greater voice in the health care system in the United States. They are the only such membership organization, directing people and policy toward solid health care. The Network educates people about health care to make them better informed health consumers, and monitors health-related legislation to protect women's health rights.

• Cancer Research Updates: The Director's Corner
  Weekly updates about breakthroughs and promising patterns in cancer research, written by Andrew C. von Eschenbach, M.D., the director of the National Cancer Institute.
  
  
• DES Daughters Listserv and Online Support Group
  http://www.surrogacy.com/online_support/des/
  
  
• DES Stories: Faces and Voices of People Exposed to Diethylstilbesterol
  Margaret Lee Braun & Nancy M. Stuart (2001). Visual Studies Workshop Press.
  "DES Stories is a tribute to the millions of lives upended by exposure to DES (diethylstilbestrol), synthetic estrogen, toxic chemicals, and carcinogenic prescription drugs. In photographic portraits and interviews, DES daughters, mothers, and sons tell, in their own voices, what it's like to be DES-exposed. Today the DES story continues to unfold as research brings new findings to light. DES Stories rings with daring honesty—and points to broader concerns about the effects of endocrine-disrupting chemicals." (Source: amazon.com)
  

• DES Daughter: A True Story of Tragedy and Triumph - The Joyce Bichler Story
  Joyce Bichler (1981). Avon Press.

• To Do No Harm: DES and the Dilemmas of Modern Medicine
  Robert J. Apfel, Susan M. Fisher, & Roberta J. Apfel  (1986). Yale University Press. 
   
• The Greatest Experiment Ever Performed on Women: Exploding the Estrogen Myth
  Barbara Seaman (2003). Hyperion Press.
  "This groundbreaking book illuminates today's "menopause industry," tracing the history of estrogen use from its early purveyors, including a well-meaning British doctor who lost control of the marketing of DES and therefore inadvertently led to the DES baby crisis, to Nazi experimentation with women and estrogen, to the present, and looks at how an experiment of this proportion could have been conducted without oversight, intervention, or real knowledge as to what its effects would be." (Source: amazon.com)
  

• Our Stolen Future: Are we Threatening our Fertility, Intelligence, and Survival? A Medical Detective Story
  Theo Colborn, Dianne Dumanoski, & John Peterson Myers (1996, Dutton; 1997, Plume). 
  Picking up where Silent Spring left off, the authors trace birth defects, sexual abnormalities, and reproductive failures in wildlife to their source-synthetic chemicals that mimic natural hormones, upsetting normal reproductive and developmental processes. By threatening the fundamental process that perpetuates survival - ability to reproduce - these chemicals may be invisibly undermining the human future as well. Includes a chapter on DES.

• "Hidden Toll of DES, A Generation Later"
  Rita Rubin, (April 14, 2003). USA Today.

• "Gendered Medical Science: Producing a Drug for Women"
  Susan E. Bell, (1995).  Feminist Studies, 21, (3), pp. 469-500.

• "A Healthy Baby Girl"
  "The Independent Television Service (ITVS) presents "A Healthy Baby Girl," an intimate, humorous, yet searing exploration of what happens when science, marketing, and corporate power enter our deepest family relationships. A Healthy Baby Girl is an inter-generational story of one family's response to an ethical and technological crisis, experienced from their home in Merrick, Long Island. Produced and directed by Judith Helfand, and edited by Tricia Reidy, A Healthy Baby Girl was produced for ITVS with major funds provided by the Corporation for Public Broadcasting." (Source: ITVS)
  

• DES Medical Publications Reference List (U.S. Center for Disease Control)

If you need to talk to someone about support for yourself or a family member, the moderators of both of the Web sites above will direct you to a DES-related clear cell cancer survivor.